The National Foundation for Ectodermal Dysplasias (NFED) is building a community of children, families and adults affected by ectodermal dysplasias, a classification of conditions which encompasses more than 180 rare genetic disorders involving defects with the hair, nails, sweat glands and teeth. They provide hope to their tight-knit community through education, support and research.
Visitors to the site can learn about ectodermal dysplasias, find educational resources to treat and live with the genetic conditions, join the NFED registry and connect with nearby families also affected by ectodermal dysplasia.
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The NFED website has several features, including:
- A responsive design that adjusts to fit tablets and mobile devices
- A filterable library of educational resources that allows visitors to view resources by topic and submit a short form to download them
- A blog to share news, personal stories from those affected by ectodermal dysplasias and tips on living with different syndromes
- Social media links that make it easy for visitors to connect and share content
- The ability to accept one-time and recurring donations directly on the site
- An event system that lets visitors see the details of upcoming events, register and pay for events directly on the site
- A store that allows visitors to purchase merchandise directly on the site
- The ability for visitors to easily sign up for a newsletter
- Custom forms that allow visitors to register to become a member of NFED, update their membership information and contact NFED
- Visitors can also submit forms to recommend a doctor, share their story and request to be connected with a local family experiencing the effects of ectodermal dysplasia